Homeentertainment news"Celine Dion Opens Up About Stiff Person Syndrome and Near-Fatal Move to...

“Celine Dion Opens Up About Stiff Person Syndrome and Near-Fatal Move to Power through Performance”

Céline Dion found the fortitude to confront her health challenges for her boys, who are still an important part of her support system. The diva is the youngest of 14 children, and Dion, 56, who was often concerned about where their next meal would come from, insulated them from sorrow.

“Both my parents were remarkable. We were quite lucky… I’ve received incredible love and support. There have been really difficult periods when my father was continuously working and my mother solely cared about us. “We were not going to miss food, love, attention, affection, or anything,” Dion recalls of her late parents, Adhémar and Thérèse. “They are the source of my power. They continue to provide me with a lot of strength in my life.

Despite not having to worry about money like her parents do, Dion still takes great care of her three sons—23-year-old René-Charles and 13-year-old twins Eddy and Nelson—from her marriage to the late Réne Angélil. Her story is told in an emotional new documentary, I Am Céline Dion, which will be available worldwide on Prime Video on June 25.

According to the five-time Grammy winner, who also had crippling health problems, she “coped” with the simultaneous loss of her parents, a sibling, the father of her children, her husband, and her manager. “I did not want my kids to be scared.”

Dion was overwhelmed before receiving her stiff-person syndrome diagnosis in August 2022: “[They] will have enough to eat tonight and tomorrow, but what if I don’t know what’s going on with me, and what if I die? What happens if I don’t wake up? They already lost their father. What are their thoughts? Are they afraid to ask me? “Should I bring this up?”

The singer decided to put her health first out of love for her children. Following her diagnosis, she felt a sense of relief, not only for herself but for her whole family.

“I told them that, although you had lost your father, your mother had a different ailment. I am not going to die. “It’s not going away, but it’s something I’m going to learn to live with,” she remembers telling her boys.

With a comprehensive treatment plan in place, Dion and her care team also taught her children about SPS. “We started talking to them about what’s going on,” she says of her twins.

Her symptoms include terrifying “crisis” periods in which her body is as rigid as a board while she is in severe agony. “They perceived a predicament, so we explained it and played it out frame by frame. “When I make a sound or don’t, what can they do because they’re 13 years old?” she asks. “They can help me out even if I don’t communicate verbally because I can’t produce a sound.”

Every two or three months, Dion and her physical therapist play out a fictitious crisis with Eddy and Nelson, and “we have panic buttons in the house and they know how to put me on my side,” she claims.

“The purpose of informing and showing them was not to terrify them. Children need to understand that “I am your mother, and it is my responsibility.” “You’re old enough to realize I might need your assistance,” she continues. “They’re fantastic because they come every night for about 15 minutes and say, ‘Mom,’ and I reply, ‘Yes?’

“They say, ‘It’s simply that it’s taken a bit longer than usual to tidy up before sleep. “We just want to make sure you’re okay.” Dion continues to discuss Eddy and Nelson’s nice check-ins. “This is our lives now: We care for each other, and they’re so helpful.”

Dion brought her eldest kid onstage with her when she surprised Swift at the Grammys earlier this year to give her the Album of the Year award.

“I didn’t want to feel shaky, and I knew I’d be terrified and delighted all at once. What may happen? The applause… Will I be surprised to see the audience? “I do not want anything bad to happen.” Dion, who may have a crisis episode if her brain is overstimulated, remembers her fears before the event. “So my kid said, ‘I’m leaving.’ I liked every moment, and I was so proud of my kid, who asked me every two minutes before I went on stage, ‘Mom, are you okay?’

“He said, ‘I’m going to walk with you, then I’ll back up a little. I’ll be behind you. You may just glance at me or move your hand whenever you need to. “I’ll hold on, and you can hold on to me.” Dion continues, becoming very emotional. “I have everything that I need.”

Abubakar is a writer and digital marketing expert. Who has founded multiple blogs and successful businesses in the fields of digital marketing, software development. A full-service digital media agency that partners with clients to boost their business outcomes.

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